New CLIMB locations starting soon!

Cameron Hospital located at 416 East Maumee St. Angola, IN
will be starting classes July 23rd. Classes will be held Mondays
and Wednesdays from 3:30-4:30pm. Cost of the classes will be
$50/month. Please contact Joell at 260-667-5163 for more information.
Stonecrest of Meridian Hills located at 8549 Meridian St. Indianapolis
will be starting classes July 24th. Classes will be held Tuesdays and Friday at 1:00pm. Please contact Mary Ellen at 317-253-2020 for more information.

SUPPORT GROUPS

Caregiver Support Group:
July 30th from 11:15am -12:45pm at Wild Eggs in Fishers. Open Discussion
Support Group:
July 25th at LivRite Fitness in Noblesville from 12:15pm-1:00pm. The speaker will be Kindred Hospice.

Greenwood Support Groups:
P.D. Support Group every 3rd Tuesday of the month at 3:00pm. The support group is held at Mt. Pleasant Community Life Center (1st floor meeting room).

Caregiver Support Group Every 2nd Saturday of each month at 10:45am. This group is held at Mt. Pleasant Community Life Center (1st floor meeting room).

Westminster Village North Support Group:
Every month on Tuesday from 2:00pm – 3:00pm and Thursday from 10:00am -11:00 am at Westminster Village North located at 11045 Presbyterian Dr. Indianapolis (317)823-6841.

2018 Choose to Move will take place Saturday September 15th at Witten Park located at 13256 Saxony Blvd. Fishers. There is a 5k run and 1mile fun run/walk.

Make a difference today! Choose to Move has become an important and successful fundraiser for the Indiana Parkinson Foundation. Your support will help us serve more people with Parkinson’s Disease.

In addition to registering for the event, you can rally your friends and family by starting your own fundraising team to help us reach our goal. Every donation makes a difference and is fully tax-deductible.

Indiana Parkinson Foundation Picnic
July 22nd at 5:00pm
Ginger’s Cafe 1804 Conner St Noblesville, IN 46060
Ticket are $12.00 per person
Call 317-550-5648 with questions.

Ladies Lunch
July 31st at 12:30pm
Jason’s Deli 11621 Fishers Station Dr. Fishers, IN 46038
Call 317-550-5648 with questions.

Educational Talk on Neurogenic Othostatic Hypotension
August 16th at 9:00am
Community Health Pavillion 9669 E. 146th St. Ste 160 Noblesville, IN
A Doctor and patient advocate will be speaking with breakfast provided.
Call 317-550-5648 to attend.

Partner Events:

Women with Parkinson’s Disease: Stronger Together
Open to all women interested in learning more about Parkinson’s Disease
Saturday July 28th from 9am-4pm.

Hosted in cooperation with PAACI at Northside Knights of Columbus
2100 East 71st St. Indianapolis. For more information call or email Linda Hinkle 317-374-4201 hinkle.l@sbcglobal.net or Deb Williams 317-698-7539 debslp47@aol.com

PAACI Fall Parkinson Symposium.
When: September 8th
Where: Northside Knights of Columbus 2100 East 71st Indianapolis
Contact: Sheri 317-255-1993
Come out and be connected with a larger Parkinson’s community and learn more about Parkinson’s disease. Dr. Joanne Wojcieszek, movement disorder specialist, will be the keynote speaker.

Caregiver’s Retreat:
Joy’s House has their final retreat August 25th from 9a –12 p at Copper Trace Senior Living Community. Mark your calendars and contact Candace Preston at 317-254-0828 if you are interested in attending.

We would like to thank those in our community who help us with our programs and services: LivRite Fitness, Wild Eggs in Fishers, The Knights of Columbus for hosting our annual breakfast, Jeri Stortzum from 1st Care Home Health Services and Lona Newton with Senior Living Advisor.

Have a safe and happy holiday from

The Indiana Parkinson

Foundation.

thNAVOZTW0.jpgBOOKS TO READ

Navigating Life with Parkinson’s Disease By: Sotirios Parashos

Parkinson’s Disease: 300 Tips for Making Life Easier By: Shelley Peterman Schwarz

Understanding Parkinson’s Disease: A Self Help Guide By: David Lee Cram & Steven Schechter

Hallucinations

By Kelsey McClymonds

Hallucinations and Parkinson’s Disease
How common are hallucinations in PD?

Hallucinations and Parkinson’s psychosis is estimated to occur in up to 50% percent of Parkinson’s patients.

What kind of hallucinations do PD patients experience?

Nearly all hallucinations that Parkinson’s patients experience are visual hallucinations. Auditory hallucinations are very rare in Parkinson’s disease however they can occur. When they do occur, they are commonly in conjunction with visual hallucinations. Common themes of the delusions are typically of spousal infidelity. Other common themes cause people to become paranoid in nature for the duration of the hallucination. Paranoia hallucinations include the patients thinking people are out to steal from them, people are trying to put poison in their food or harm them, or replace their Parkinson’s medications. It is very important that immediate actions are taken for the paranoia hallucinations as some PD patients have called 9-1-1 to report the false reports.

What causes the hallucinations?

Researchers and doctors are still not positive on what exactly causes the hallucinations in Parkinson’s disease. However, some researchers now believe that psychosis in PD is due to long term use of parkinsonian medications. Dopaminergic and anticholinergic drugs are especially found to be a likely cause of the hallucinations. Through this research a “continuum hypothesis” has been created. This hypothesis states that “medication-induced psychiatric symptoms in Parkinson’s disease starts with sleep disturbances accompanied by vivid dreams, and then develops into hallucinations and delusions and ends in delirium.” (Movement Disorders & Neurorestoration Program, Okun) The link to the medications has been established due to the notion that research shows that psychotic symptoms are related to high levels of dopamine and in PD patients this is often a result of their medication since the nature of the disease is that patients have extremely depleted levels of dopamine in the substantia nigra. Thus the hallucinations are most commonly a side effect of the medications that they take.

How can the hallucinations be managed?

Some antipsychotic drugs can be used to treat this symptom, however, it is warned to be careful with this method of treatment for hallucinations as some antipsychotic drugs are harmful to Parkinson’s patients and have the potential to make the hallucinations or delusions worse. Other methods of managing the psychosis is that your doctor may first reduce or change the PD medication that you are taking to see if that reduces the psychotic symptoms. This method requires you and your doctor finding a balance between the treatment and the side effect of the drug. PD patients need higher levels of dopamine to help control the motor symptoms however the dopamine levels can’t be so high because that can cause the hallucinations and psychosis.

MEDICATION THAT SHOULD BE AVOIDED WITH PARKINSON’S DISEASE:

Source, APDA website.

The manufacturers of these medications may not list Parkinson’s disease as an absolute contraindication; however, better choices within a medication class may be suggested. Some of these medications alter the brain ‘s dopamine system causing an increase in Parkinson’s symptoms, others may chemically interact with Parkinson’ s medications and cause side effects. This is not intended to be a complete list and additional brand names may occur for each medication. If you have any questions about this list, please talk to your physician or pharmacist.

Medication———Chemical———————-Brand———————-Interaction

Older Antipsychotics (used to treat behavioral disorders)

Chlorpromazine Fluphenazine Haloperidol* Loxapine Thioridazine Thiothixene Trifluoperazine Pimozide

Thorazine® Prolixin® Haldol® Loxitane® Mellaril® Navane® Stelazine® Orap

Block dopamine receptors in the brain, worsening PD symptoms

Antiemetics (used to treat nausea or vomiting)

Chlorpromazine Droperidol Metoclopramide Prochlorperazine Promethazine

Thorazine® Inapsine® Reglan® Generics® Generic

Block dopamine receptors in the brain, worsening PD symptoms

Medication———— Chemical————name————-Interaction

Antihypertensives (used to decrease blood pressure)

Reserpine

Methyldopa

Serpalan®

Aldomet®

Decrease dopamine stores and activity, worsening PD symptoms

Antidepressants (used to treat depression)

Phenelzine Tranylcypromine

Nardil®

Pamate®

Inhibit monoamine oxidase. Should not be taken in patients receiving levodopa, may increase blood pressure, fever, or agitation

Antidepressants (used to treat depression)

Amoxapine

Generics®

Block dopamine receptor

s in the brain, worsening PD symptoms

Note: There may be additional brand names for each medication. This is not intended to be a complete list. * The package insert for Haldol® (haloperidol) lists use in patients with Parkinson’s disease as a contraindication

Medications that should not be taken with

Selegiline HCL (Eldepryl, Deprenyl, Zelapar) and Rasagiline (Azilect)

Medication————Chemical Name——Brand name

Narcotic/Analgesic

Meperidine

Tramadol

Methadone

Propoxyphene

Demerol®

Ultram®

Dolophine®

Darvon®

Antidepressants

Mirtazapine

St. John’s Wort

Remeron®

Several Brands

Muscle Relaxants

Cyclobenzaprine

Flexeril®

Medication——————————————Chemical———————-Brand
Cough Suppressant

Dextromethorphan

Numerous Brands

Decongestants/
Appetite Suppressants
(found in cough, cold, allergy, and sinus medicines)

Pseudophedrine Phenylephrine

Ephedrine

Sudafed®

Sudafed PE®

Note: There may be additional brand names for each medication. This is not intended to be a complete list. Using these agents with selegiline or rasagiline increases the risk of one or more of the following: high blood pressure, increased heart rate, respiratory depression, seizures, tremors, fever, confusion, or behavior changes.

Medication classes that should be discussed with doctor or pharmacist

Newer Antipsychotics: Clozapine (Clozaril) and quetiapine (Seroquel) have the least risk of worsening Parkinson symptoms and are the treatments of choice for drug induced hallucinations and psychosis.

Antidepressants: Some agents within this class may worsen PD symptoms, increase confusion, or interact with some of your PD medications.

Antihistamines: These are found in cough, cold, allergy, and sleep medications. When taking these medications, the elderly are at an increased risk of the following side effects: blurred vision, confusion, constipation, urinary retention, and dry mouth. The newer antihistamines loratadine (Claritin®) and desloratadine (Clarinex®) may have less side effects than older antihistamines. Cetirizine (Zyrtec®) may or may not have less risk. Topical eye or nose sprays/drops have the least risk of these side effects.

Non-prescription medications and supplements: Some of these agents may interact with PD medications. They may not be contraindicated; however, an adjustment in the timing of the medication may be needed. For example, iron supplements may decrease the absorption of levodopa and these medications should be spaced as far as possible.

The above tables were compiled by Maria Tan, Pharm .D. candidate and Mary Wagner, Pharm.D., MS Ernest Mario School of Pharmacy at Rutgers, the State University of New Jersey.

The information contained in this supplement is solely for the information of the reader. It should not be used for treatment purposes, but rather for discussion with the patient’s own physician.

For additional free copies of this supplement, please call or visit the website AMERICAN PARKINSON DISEASE ASSOCIATION (800) 223-2732 • www.apdaparkinson.org © Copyright APDA, Inc. Reprinted August 2016

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Aquatic Therapy

Aquatic therapy refers to treatments and exercises performed in water for relaxation, fitness, physical rehabilitation, and other therapeutic benefit. Usually a qualified aquatic therapist, physical therapist or trained exercise specialist gives constant attendance to a person receiving treatment in a heated therapy pool.

Benefits of aquatic therapy for Parkinson’s patients include:

Water reduces the fear of falling.
Movements take less effort due to the buoyancy in the water.
The water allows for bigger and larger movements.
The water offers resistance.
The warm temperatures aid in relaxing the muscles and helps to lessen the rigidity.
Individuals can stand taller in the pool which increases the core and trunk muscles.
Helps to reduce swelling, and pain, and increase circulation.
Creates less stress on the muscles.

Ft. Wayne:
Summit Physical Therapy – 260/484-9491
Parkview Rehabilitation Therapies- 260/266-4080
Kokomo:
St Vincent Kokomo Physical Therapy-765/236-8500
Carmel:
Riverview Health and Rehab-317/705-4350
Noblesville:
Riverview Health and Rehab-317/776-7225
Bloomington:
Rehab and Sports Medicine Center-812/353-9484
Garden Villa – 812/339-1657
Greenwood:
Physical Therapy and Rehab Stone Crossing-317/535-4075
New Albany:
Southern Indiana Rehab Hospital- 812/941-8300
Evansville:
Rehab for Life- 812/401-5210

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Hospitalization and being Prepared.
Source: APDA and the National Parkinson Foundation sites
Parkinson’s and Hospitalization:

You should have a pre-plan for any hospitalizations or emergency visits. Many hospitals are not educated on PD medications and symptoms. It is up to you and your caregivers to be prepared for this situation.

Why is this so important?

Your Neurologist whom you are seeing might not have hospital privileges at the hospital you are admitted.
The Physician on staff might not have any experience with Parkinson’s Disease.
A recent study found that 3 out of 4 people did NOT receive their Parkinson’s medications on time during hospital stays, which put those living with the disease at risk.
If you are in need of surgery, or other medical procedures, there are certain medications that INTERACT with Parkinson’s medications.
Get an AWARE and CARE KIT from the National Parkinson’s Foundation. They are free of charge, call 1-800-473-4636 or go to Parkinson.org and order your kit online. This is a great resource for anyone living with Parkinson’s disease.
What’s in the Kit?

Bag: Pack the bag with your Parkinson’s medications and Aware in Care materials.
Hospital Action Plan: Read about how to prepare for your next hospital visit, whether it is planned or an emergency.
Parkinson’s Disease ID Bracelet: Wear your bracelet at all times in case you are in an emergency situation and cannot communicate.
Medical Alert Card: Fill in the card with emergency contact information, and put it in your wallet.
Medication Form: Complete this form and keep copies in the bag.
Parkinson’s Disease Fact Sheet: Share the facts about Parkinson’s with hospital staff, and ask that a copy be placed in your chart.
I Have Parkinson’s Reminder Slips: Share vital information about Parkinson’s disease with every member of your care team in the hospital.
Magnet: Use this magnet to display a copy of your Medication Form in your room.

What you will need:

Keep a current list of emergency contacts including your doctors, neurologist and any other specialist and their name and contact numbers.
Bring a Parkinson’s disease quick fact sheet.
Medication reminders
A list of drugs that interact with Parkinson’s Medications.
Some of your current medications in their original bottles with dosages.
A letter from your neurologist stating that your medications need to be given at certain times, along with a signature and their contact information.
Medical notebook with all medical information, including any surgeries.
An advocate for the Parkinson’s patient, either a family member or friend.
Contact your Parkinson’s Doctor as soon as you are hospitalized.

For forms for keeping track of medications or hospital plans please email Jada@indianaparkinson.org, or they are available online to download at Aware in Care.

VA offers a variety of services and programs for Veterans and their family caregivers.

To sign up for any of these services, contact VA’s Caregiver Support Line 1-855- 260-3274, or your local Caregiver Support Coordinator.

Adult Day Health Care Centers

These centers are a safe and active environment with constant supervision designed for Veterans to get out of the home and participate in activities.

Home-Based Primary Care (HBPC)

This program delivers routine health care in your home when medical issues
make it challenging for a Veteran to travel. This service can also include physical
rehabilitation, mental health care for your Veteran, social work and referrals.

Home Hospice Care

Comforting and supportive services for you and the Veteran you care for in your own home. An interdisciplinary team of health care providers and volunteers from a local community hospice agency is there for you 24 hours a day, seven days a week. Grief counseling is also available for you and other immediate family members.

Homemaker and Home Health Aides

This program provides in-home care to Veterans with personal care needs on a routine schedule. This care is arranged by your local VA medical center.

Home Telehealth

Designed for Veterans who live at a distance from a VA medical center, the
Home Telehealth program connects them with a care coordinator through
technology (e.g., telephone, computers). These services may also include
education and training or online and telephone-based support groups.

Respite Care

Respite care is a way to take a break from your caregiving duties. It allows for relaxation and renewal, and helps to avoid burnout. Veterans who require
a caregiver may be eligible for up to 30 days of respite care each year. This care
can be offered in your home, at a VA community living center, at a VA-contracted community residential care facility, or at an adult day health care center.

Skilled Home Care

This service provides medical care for homebound Veterans. The Skilled Home
Care service is similar to Home-Based Primary Care, but involves VA purchasing
care for a Veteran from a licensed non-VA medical professional.

Need Help?

Caregiver Support Coordinator

Your local Caregiver Support Coordinator is a licensed professional who can
support you by matching you with services for which you are eligible, and
providing you with valuable information about resources that can help you stay
smart, strong and organized as you care for the Veteran you love. Enter your zip
code to view contact information for your area.

(Information provided by the US Department of Veterans Affairs
www.va.gov)

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Caregivers Products:
We have searched for assistive devices to help caregivers in bathing, feeding, dressing, positioning and transferring.

Do you feel helpless trying to care for someone in your home? We provide adaptive eating utensils, special plates, writing tools, bathing aids, positioning pillows and other adaptive aids to help make in home care easier.

Dressing aids:
Zip Grips attache to your zippers and are perfect for those who have difficulty with pulling small zippers.
Myself One Handed Belts this is an magnetic belt that is easy to put on with individuals who have hand problems. Available at:www.caregiverproduct.com
or1.877.750.0376

Loan Library:

We have a walker and a wooden cane available for anyone who could use them.
Pick up is in Noblesville, if interested please call 317-550-5648.

Join IPF on Social Media
Encourage your friends, family, and neighbors to follow us on social media, so we can inform those in the community about Parkinson’s Disease and all our programs.
Facebook: Indiana Parkinson Foundation
Instagram: @indianaparkinsonfoundation
Twitter: @IN_Parkinson

Volunteers needed
If you have an interest in serving on IPF committees or in classes please contact Jada Aidun at 317-550-5648. We are looking for people who want to give back and get involved by using their skills and talents.

Kroger
Re-enroll with Kroger community rewards for the Indiana Parkinson Foundation they are only good for a year! Call 1-800-KROGERS for more information.

Amazon Smile
With just one click you can add the Indiana Parkinson Foundation to your purchase. Each time you shop Amazon you will be helping those with Parkinson’s Disease.

Upcoming Special Events

Upcoming Special Events

Choose to Move Race April 13, 2019

Help us help Hoosiers with Parkinson's today!

Location: Witten Park
13256 Saxony Blvd, Fishers, IN
9:30am - 5k and fun run/walk

Get Registered!

The CLIMB

The Indiana Parkinson Foundation is committed to giving people with Parkinson's disease their lives back through active engagement in The CLIMB.

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